Expressing support for the designation of May 15, 2025, as Prader-Willi Syndrome Awareness Day to raise awareness of and promote research on the disorder.
Sponsors
Legislative Progress
In CommitteeMr. Tonko (for himself and Ms. Salazar) submitted the following …
Summary
What This Bill Does
This is a simple House resolution that expresses Congress's support for designating May 15, 2025 as "Prader-Willi Syndrome Awareness Day." Prader-Willi syndrome is a rare genetic disorder that affects approximately 1 in 15,000 people. The resolution recognizes the efforts of advocacy groups and calls attention to the need for better awareness, early diagnosis, research, and treatment development. Importantly, this is a non-binding resolution - it does not create any new laws, funding, or requirements.
Who Benefits and How
Prader-Willi syndrome patients, their families, and advocacy organizations receive symbolic recognition and congressional support. This may help raise public awareness and could potentially pave the way for future legislation that provides actual funding or regulatory changes. However, the resolution itself provides no tangible benefits such as research funding, insurance coverage mandates, or treatment subsidies. Medical researchers and pharmaceutical companies working on rare disease treatments receive acknowledgment that regulatory pathways for drug development are important, but no concrete policy changes.
Who Bears the Burden and How
No one bears any burden from this resolution. It requires no action from any federal agency, imposes no new regulations on businesses, and allocates no taxpayer funds. There are no compliance requirements, reporting mandates, or other obligations created by this resolution.
Key Provisions
- Supports the designation of May 15, 2025 as Prader-Willi Syndrome Awareness Day
- Applauds advocacy organizations and individuals working to support people affected by the disorder
- Recognizes the commitment of parents, families, researchers, and health professionals seeking treatments and cures
- Emphasizes the importance of public awareness, early and accurate diagnosis, advancing research, developing new treatments, and identifying regulatory pathways for rare disease drug development
- Creates no funding, mandates, or regulatory changes (purely symbolic expression of congressional support)
Evidence Chain:
This summary is derived from the structured analysis below. See "Detailed Analysis" for per-title beneficiaries/burden bearers with clause-level evidence links.
Primary Purpose
A non-binding resolution expressing support for designating May 15, 2025 as Prader-Willi Syndrome Awareness Day and promoting awareness and research for this rare genetic disorder.
Policy Domains
Legislative Strategy
"Non-binding symbolic resolution to raise awareness for a rare genetic disorder affecting approximately 1 in 15,000 births"
Likely Beneficiaries
- Prader-Willi syndrome patients and families
- Rare disease advocacy organizations
- Medical researchers focused on genetic disorders
- Healthcare professionals treating rare diseases
Bill Structure & Actor Mappings
Who is "The Secretary" in each section?
We use a combination of our own taxonomy and classification in addition to large language models to assess meaning and potential beneficiaries. High confidence means strong textual evidence. Always verify with the original bill text.
Learn more about our methodology