To reauthorize the congenital heart disease research, surveillance, and awareness program of the Centers for Disease Control and Prevention, and for other purposes.
Analysis under review: This bill has generated analysis that may be too generic or incomplete. Clause-level evidence remains available below.
Summary
What This Bill Does
This bill reauthorizes the Congenital Heart Futures Act for five more years (2025-2029), extending federal funding and programs for congenital heart disease research and surveillance. It adds new requirements for the Secretary of Health and Human Services to convene a stakeholder workshop on adult patients with congenital heart disease and to report to Congress on research gaps and workforce shortages.
Who Benefits and How
Adult patients with congenital heart disease benefit from increased research focus on their lifelong healthcare needs, mental health, and quality of life. Healthcare providers specializing in adult congenital heart disease may benefit from strategies to expand fellowship training programs. Patient advocacy organizations gain a formal seat at the table through mandated stakeholder workshops. Research institutions benefit from continued federal support for congenital heart disease studies.
Who Bears the Burden and How
The Department of Health and Human Services faces new administrative requirements to organize workshops and produce reports within specified timeframes. Federal agencies including CDC, NIH, and HRSA must participate in coordination efforts. There are no significant new burdens on private industry or individual taxpayers beyond existing program authorizations.
Key Provisions
- Extends authorization of the national congenital heart disease program from 2024 to 2029
- Requires HHS to convene a stakeholder workshop within 1 year to assess research gaps and workforce capacity for adult congenital heart patients
- Mandates a Congressional report within 3 years on strategies and progress for research and workforce development
Evidence Chain:
This summary is generated from the full bill text using AI analysis. Expand "Detailed Analysis" below for identified beneficiaries/burden bearers.
At a Glance
What This Bill Does
Reauthorizes and expands federal programs for congenital heart disease research, surveillance, and awareness, with new requirements for stakeholder workshops and workforce assessments for adult patients.
Key Policy Areas
Healthcare, Medical Research, Public Health
Primary Purpose
Reauthorizes and expands federal programs for congenital heart disease research, surveillance, and awareness, with new requirements for stakeholder workshops and workforce assessments for adult patients.
Policy Domains
Congenital Heart Futures Reauthorization Act of 2024
Identified Gains
Contextual inference, no direct clause citation- Adult patients with congenital heart disease
- Congenital heart disease researchers
- Healthcare providers specializing in adult congenital heart care
- Patient advocacy organizations
Contextual inference, no direct clause citation
Identified Costs
Contextual inference, no direct clause citation- Department of Health and Human Services
- Federal health agencies (CDC, NIH, HRSA)
Contextual inference, no direct clause citation
Sponsors
Legislative Progress
ReportedReported by Mr. Sanders, with an amendment
Mr. Durbin (for himself and Mr. Young) introduced the following …
Mr. Durbin (for himself, Mr. Young, Mr. Casey, Ms. Smith, …
Stakeholder Effects
cui bono?How this legislation distributes effects. Mention counts reflect frequency, not effect magnitude.
Cardiologists specializing in adult congenital heart disease
Bill Structure & Actor Mappings
Who is "The Secretary" in each section?
- "the_secretary"
- → Secretary of Health and Human Services
We use a combination of our own taxonomy and classification in addition to large language models to assess meaning and potential beneficiaries. High confidence means strong textual evidence. Always verify with the original bill text.
Learn more about our methodology