To amend the Public Health Service Act to authorize the Secretary of Health and Human Services to carry out a program of research, training, and investigation related to Down syndrome, and for other purposes.
Sponsors
Legislative Progress
Passed HouseMrs. Rodgers of Washington (for herself, Ms. DeGette, Mr. Cole, …
Passed House (inferred from eh version)
Summary
What This Bill Does
Codifies the NIH INCLUDE Project (INvestigation of Co-occurring conditions across the Lifespan to Understand Down syndromE), establishing a comprehensive research program on Down syndrome and its co-occurring conditions.
Who Benefits and How
Individuals with Down syndrome and their families benefit from dedicated research into co-occurring conditions like Alzheimers. Researchers gain a coordinated framework for Down syndrome studies. Clinical trials become more inclusive of Down syndrome participants.
Who Bears the Burden and How
NIH must coordinate multiple institutes and centers around Down syndrome research. Federal budget absorbs research program costs.
Key Provisions
- Establishes INCLUDE Project within NIH Office of the Director
- Focuses on chromosome 21 effects, co-occurring conditions, and quality of life
- Expands clinical trials inclusive of individuals with Down syndrome
- Researches why conditions like Alzheimers are prevalent in Down syndrome
- Coordinates across NIH institutes through Division of Program Coordination
Evidence Chain:
This summary is derived from the structured analysis below. See "Detailed Analysis" for per-title beneficiaries/burden bearers with clause-level evidence links.
Primary Purpose
Authorizes NIH INCLUDE Project for Down syndrome research across the lifespan
Policy Domains
Legislative Strategy
"Create comprehensive federal Down syndrome research program"
Bill Structure & Actor Mappings
Who is "The Secretary" in each section?
- "nih_director"
- → Director of NIH
- "the_secretary"
- → Secretary of HHS
We use a combination of our own taxonomy and classification in addition to large language models to assess meaning and potential beneficiaries. High confidence means strong textual evidence. Always verify with the original bill text.
Learn more about our methodology